About Henry My Story: Thirteen Weeks Early How I arrived three months early, survived a tricky first 24 hours, and set the tone for proving doctors wrong ever since.
Cerebral Palsy SDR Surgery Really Does Change Lives We had to fight for Selective Dorsal Rhizotomy surgery, and it became the best decision we ever made. Here's our whole SDR journey, from the scary decision to walking independently.
Cerebral Palsy My Therapy Toolkit: What We Use and Why Physiotherapy is a lifetime commitment in our house. Here's everything in our toolkit (CIMT, DMI, FES, kinesio tape, Botox, intensive courses and more) and what each one actually does.
Epilepsy Living With Epilepsy (It Sucks, But We've Got This) Nocturnal status seizures, night-time monitors, medication juggling, and the streaks we celebrate, the honest truth about the hardest part of our lives.
Equipment Helpy Hand, Splints and All My Awesome Kit Meet Helpy Hand, my ever-changing AFO splint collection, three kinds of walker, a trike, a mobility scooter and the rest of the kit that gives me my independence.
Sport Sport: Frame Football, Horses, Swimming and Proving People Wrong Frame football camps, horse riding, the long road to swimming without floats, charity bike rides and a mini triathlon, sport is where I do my best overachieving.
School School: Mainstream and Proud I'm the only child with cerebral palsy at my mainstream school, and thanks to the most inclusive teachers and friends anywhere, I've never once been left out.
Angel Angel and the Rest of My Animal Army My first word was "dog". Five years of campaigning, one very patient set of parents and a flock of chickens later, meet Angel, my Australian Labradoodle.
Fundraising TEAM HENRY: Fundraising and the Charities That Carry Us Raffles, race nights, sponsored bike rides and an uncle who runs 10Ks, plus the incredible charities and the army of family, friends and local businesses behind my equipment and therapy. This is how it all gets funded.
Advice What We've Learned (For Families at the Start of This Journey) PTSD is not just for soldiers, early intervention is everything, and "give it a go" beats "you can't" every time. Eight years of hard-won lessons from our family to yours.
